Oct 31 2024
Narcolepsy Family Weekend 2024 Recap
h in News
Wake Up Narcolepsy (WUN)’s 2024 Family Weekend took place October 18th – 20th at the Center for Courageous Kids (CCK) in Scottsville, Kentucky!
Although this weekend-long camp is usually only for families of children and teens with sleep disorders, WUN recognizes that other conditions affect our community. This year, parents with Narcolepsy whose child is affected by one of the conditions served by CCK were also invited to attend.
Speakers were Dr. Luis Ortiz and Kelsey Biddle, who shared valuable information about the disorder and hung out with campers and families all weekend. Kelsey’s friend and fellow medical student, Lilly Montesano Scheibe, also spoke on her experience. Attendees were excited to engage with three people who were living with Narcolepsy but also working in the medical field.
Parents, kids and teens alike were able to form meaningful connections with people who understood what they were going through.
WUN expresses gratitude to CCK for having us and to everyone who made this possible, including sponsors, volunteers and attendees.
Volunteers included Ella Walsh from Ireland and Solomon Briggs who helped with photography.
Sponsors included Jazz Pharmaceuticals and Harmony Biosciences.
Keep an eye out for 2025 session dates.
Event Photos:
