The Center For Courageous Kids (CCK)
1501 Burnley Road, Scottsville, KY 42164
If you have any questions, please reach out to info@wakeupnarcolepsy.org
Featured Guests
Luis Ortiz, MD
Dr. Ortiz is a physician in the Sleep Center at Johns Hopkins All Children’s Hospital. He joined the medical staff in 2018. He sees patients at the main campus in St. Petersburg, Florida, as well as at Johns Hopkins All Children’s Outpatient Care, East Lake.
Dr. Ortiz earned his medical degree from the University of Rochester. He completed his residency in internal medicine and pediatrics at the Charleston Area Medical Center. He also completed a fellowship in pediatric pulmonology at the Johns Hopkins University School of Medicine in Baltimore, Maryland. He also completed a fellowship in sleep medicine at the Children’s Hospital of Philadelphia and the Hospital of the University of Pennsylvania in Philadelphia.
His clinical interests include narcolepsy, hypersomnia, obstructive sleep apnea, and skeletal dysplasias. His research interests include examining the interaction of sleep disorders on chronic pediatric diseases such bronchopulmonary dysphasia, asthma, and developmental delay. He has worked extensively in creating educational content for people with narcolepsy as well as advocating for patients with rare diseases.
Thank you to our 2026 Family Weekend Sponsors!
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Sample Schedule
Friday
2:00 – 3:00pm Volunteer Arrival
3:00pm – 5:00pm Family Arrival
➢ “Equine Encounters” 3:30-5:00 at the Horse Barn & Free Play at the Musical Garden are open at this time.
3:00pm – 4:30pm Volunteer Orientation in the Gym
5:45pm Family Orientation in the Gym
6:30pm Dinner in the Dining Hall
7:15pm Horseback Riding Signups at the Stage in the Dining Hall
7:45pm – 9:00pm Swimming in the Pool, Cosmic Bowling/Arcade Games in the Fun Center, Board Games in the Dining Hall, and/or S’mores at the Fire Pit
9:15pm Staff/Volunteer meeting in the Dining Hall
Saturday
7:30am – 8:15am Early Risers: Woodshop, Music, and/or Parents-Only Coffee & Connections in the Discovery Lodge (kids under 18 who need supervision while parents are at Coffee & Connections can be dropped off with counselors at the Gym at 7:30; they will have the choice of engaging in Fun & Games in the Gym or being taken Music or Woodshop. They will be brought back to the Dining Hall for pick-up.)
8:30am Breakfast in the Dining Hall
9:30am – 10:30am Bingo in the Discovery Lodge, Fun Center, Fishing, Dancing, and/or Mini Golf
10:45am – 12:15pm PARENTS: Educational Session in the Discovery Lodge. Drop off kids and pick up campers at the Dining Hall. CAMPERS: Dance Party & Board Games at Dining Hall
12:30pm Lunch in the Dining Hall
1:30pm – 3:00pm Siesta
2:00pm – 3:00pm Teen Conversation in the Dining Hall
| Afternoon Horseback Riding Sessions: (What you signed up for Friday Night) | ||
|---|---|---|
| Session 1 3:00pm – 3:50pm |
Session 2 3:50pm – 4:40pm |
Session 3 4:40pm-5:30pm |
3:00pm – 4:15pm Red & Blue: Arts & Crafts, Music and/or Cooking (Dining Hall) Yellow & Green: Nature at the Adventure Lodge, Mini-Golf, and/or Archery
4:30pm – 5:45pm Red & Blue: Nature at the Adventure Lodge, Mini-Golf, and/or Archery Yellow & Green: Arts & Crafts, Music and/or Cooking (Dining Hall)
6:00pm Dinner in the Dining Hall
7:00pm Cubby Signing in the Gym
7:30 – 8:45pm Stage Night in the Dining Hall
9:15pm Staff/Volunteer Meeting in the Dining Hall
Sunday
8:30am Breakfast/Clean-Up Announcements in the Dining Hall
9:30am – 10:50am Rock Wall Climbing (must be age 9 or older, closed-toe shoes and pants required), Fishing, and/or Woodshop, Bingo
9:50am – 10:50am Critter Club at the Horse Barn
11:00am Closing Ceremony/Cubby Reveal in the Dining Hall
