Showcasing Community Voices at the 2026 SLEEP Meeting
The 2026 SLEEP Meeting hosted by the Associated Professional Sleep Societies, LLC (APSS) took place......
Wake Up Narcolepsy (WUN) is a 501(c)(3) nonprofit organization dedicated to driving Narcolepsy awareness, education and research towards improved treatments and a cure.
Narcolepsy by the Numbers
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Narcolepsy affects 1 in every 2,000 Americans and 3 million people worldwide.
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It is estimated that up to 50% of patients with Narcolepsy may be undiagnosed.
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Typical onset of Narcolepsy is between the ages of 10 and 20 years old, but can occur in early childhood.
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On average, patients have 6 physician visits before receiving a Narcolepsy diagnosis.
Online Support GroupsFree, online support groups worldwide for people with Narcolepsy and their families. |
National SummitThis one-day summit is for people with Narcolepsy, their families, educators, clinicians and researchers. |
Clinical TrialsPatient engagement in clinical trials help find new ways to treat individuals with Narcolepsy. |
Annual Family WeekendChildren & Teens with Narcolepsy can meet others experiencing the same symptoms and challenges. |
Join Our TeamDo you share our passion for advocating on behalf of those with Narcolepsy? |
What’s New?
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Findings From the Institute for Clinical and Economic Review (ICER) Now Available
Advocacy can take many forms, but what stands out most with each opportunity is the......
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Jazz Pharmaceuticals to Present Comprehensive Data at SLEEP 2026 Highlighting Broad Treatment Effects of Xywav® (calcium, magnesium, potassium, and sodium oxybates) Oral Solution for People with Narcolepsy and Idiopathic Hypersomnia
DUBLIN, June 4, 2026 /PRNewswire/ — Jazz Pharmaceuticals plc (Nasdaq: JAZZ) today announced that the company will present 21 abstracts,......
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Future Neurology “Real-world insights into idiopathic hypersomnia symptoms, treatments, and quality of life from the ARISE study: a Plain Language Summary of Publication”
Logan D. Schneider, Amy Desmarais, Aatif M. Husain , Diane Ito, Douglas S. Fuller, Phyllis......