2026 Narcolepsy Family Weekend Recap
Wake Up Narcolepsy (WUN)’s 2026 Family Weekend took place March 27th – 29th at the......
Wake Up Narcolepsy (WUN) is a 501(c)(3) nonprofit organization dedicated to driving Narcolepsy awareness, education and research towards improved treatments and a cure.
Narcolepsy by the Numbers
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Narcolepsy affects 1 in every 2,000 Americans and 3 million people worldwide.
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It is estimated that up to 50% of patients with Narcolepsy may be undiagnosed.
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Typical onset of Narcolepsy is between the ages of 10 and 20 years old, but can occur in early childhood.
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On average, patients have 6 physician visits before receiving a Narcolepsy diagnosis.
Online Support GroupsFree, online support groups worldwide for people with Narcolepsy and their families. |
National SummitThis one-day summit is for people with Narcolepsy, their families, educators, clinicians and researchers. |
Clinical TrialsPatient engagement in clinical trials help find new ways to treat individuals with Narcolepsy. |
Annual Family WeekendChildren & Teens with Narcolepsy can meet others experiencing the same symptoms and challenges. |
Join Our TeamDo you share our passion for advocating on behalf of those with Narcolepsy? |
What’s New?
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Alkermes Announces Initiation of Phase 3 Brilliance Studies Evaluating Alixorexton for the Treatment of Narcolepsy Type 1 and Type 2
DUBLIN–(BUSINESS WIRE)–Apr. 1, 2026– Alkermes plc (Nasdaq: ALKS) today announced the initiation of the Brilliance Studies, a......
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Lilly to acquire Centessa Pharmaceuticals to advance treatments for sleep-wake disorders
INDIANAPOLIS and BOSTON and LONDON, March 31, 2026 /PRNewswire/ — Eli Lilly and Company (NYSE: LLY) and Centessa Pharmaceuticals plc (Nasdaq: CN...
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Join Us for April’s Brown Bag Webinar – Navigating Narcolepsy and Pregnancy
Join us on April 9th at 2pm ET for our next Brown Bag Webinar, “Navigating......